Manage Your Health Data with Confidence
Trua is your personal portal for research participation, privacy control, and transparent data sharing.
Trua, powered by DigitalCabinet, allows you to manage your health data, participate in studies directly, and selectively share your data with community registries hosted on DigitalCabinet. Each decision is yours — nothing is shared unless you say so.
What is Trua, and how does it relate to DigitalCabinet?
Trua is the individual participant portal built on top of the DigitalCabinet infrastructure. It allows you to manage your personal health data, participate in standalone studies, and choose — on a granular level — where your data can be shared. You can also send your data to specific DigitalCabinet instances managed by organizations, if and when you choose.
How do I join a community registry?
Each registry hosted on DigitalCabinet has its own website or enrollment process. If you’re interested in joining a community's registry, you’ll visit their site directly and follow their onboarding instructions. Trua doesn’t replace these — it complements them by giving you control over your participation and data sharing across registries.
Can I participate in studies directly through Trua?
Yes. Some standalone studies exist directly on Trua without needing to join a community registry. You can browse available studies in your portal and choose which ones to join.
Is my data shared with anyone automatically?
No. You have complete control over where and when your data is shared. Each consent is specific — you opt in on a per-study or per-registry basis. Nothing is shared unless you explicitly approve it.
What if I change my mind about sharing data?
You can revoke consent at any time through Trua. If you’ve previously shared data with a registry or study, your access can be updated or withdrawn, and raw data will be removed from receiving systems according to policy.
Communities on DigitalCabinet
DigitalCabinet hosts a diverse range of participant communities, including 501(c)(3) nonprofits and informal groups united by common goals. Browse through the options and send a request to join the community that aligns with your interests.
Group-Funded Registries
PXE International
iHope Genetic Health
FNDHope International
Nevus Outreach
Arachnoiditis & Chronic Meningitis Collaborative Research Network
Alagille Syndrome Alliance
